English (United States)

PNH Registry

Pathology : Hematology
reduce font Size enlarge font Size print content

Study Title

Paroxysmal Nocturnal Hemoglobinuria Registry

Study Detail

Study Objective


  • The PNH Registry will collect data to evaluate safety data specific to the use of Soliris
  • The PNH Registry will collect data to characterize the progression of PNH as well as clinical outcomes, mortality and morbidity in Soliris and non-Soliris treated patients



  • Raising PNH awareness in the medical community and subject/potential subject population.

Participation conditions

  • PNH patients of any age, including minors, that are receiving Soliris or
  • PNH patients of any age, including minors, that are not on Soliris treatment

PNH patients include all patients with a diagnosis of PNH or a detected PNH clone.


Centre Hospitalier de Luxembourg

Contact person

Charlotte Lieunard
+352 26 970 847

Tags: Paroxysmal Nocturnal Hemoglobinuria, Soliris, safety, registry, disease progression, clinical outcome, PNH Registry

Studies overview

This page provides the list of clinical studies currently registered in the LuxCLIN platform in the different therapeutic areas. By clicking on each study title, more information is displayed concerning the study objective and the participation conditions.